Human Awareness

So much stress, so much drama and a lot of hurt feelings in the last few months.  The endometriosis awareness community on Facebook had some major blow ups, some bullying, and a lot of harassment.  I finally ended up leaving the groups that were having so many issues. Later I moved on to start my own support group, I invited only the ladies I trusted the most, and knew were …

Life, Life and more Life

Hello my wonderful readers and stalkers. 😉 So it has been a month since my last update. So much has been going on that I have not really had the time to post much of anything. I have been lacking on my social media (Sorry to my G+ family, you know I love you!) and I have been pouring my energy and time into other things. What has been keeping …

The Story Of My Christmas Tree

(Originally posted last year, but more added tonight) I love Christmas, it was such a huge family thing when I was younger. Up until our family fell apart, about 11 years ago, it was full of siblings, cousins, nieces, nephews, grandparents, aunts, uncles, and friends. My favorite thing? Not the gifts we gave each other each year, but the story of our tree. The memories that passed through my mind, …

A bit of an update.

  To my followers, my readers, my G+ family, my Endo sisters.. Last I wrote I was getting ready to do the Interstim trial for bladder issues due to IC. Sad to say, I had the surgery done, then I was allergic to the trial leads and had a very bad experience. Does it work? YES it does, it cut down on pain, it cut down on need to urinate, …

Proud Mother

  With a new school year comes new friends, new teachers, new classes, new people to “explain” my daughter’s situation to. My daughter, beautifully, creatively, intelligent young lady, now in 8th grade. Each year we have a “Meet and Greet” with the teachers for both kids. I always start off with “This is Cyan, she is autistic, though high functioning, she still struggles with people touching her, loud noises, lights, …

Surviving Endo “Flares”

First, what is an “endo flare”? Well, it is when our pain from endometriosis hits a high. Usually do to stress, ovulation (pms), physically over doing something, or another health issue that inflames our bodies. So, I thought, since I’m in the beginning of a flare, I could write about how to handle it. I know when I become completely fatigued I am in for a rough week or two. …

Lily The Ovary, New Diagnosis (confirmed actually)

Many of you already know, yesterday was my appointment with my Endometriosis Dr. I had my yearly pelvic exam, and was there to discuss a few things. Discussion: Ovarian pain, right side only, lasting longer than normal. Possibility of removing last ovary remaining (Lily) Needing a official diagnosis of Pelvic Floor Dysfunction, to give to Pain Management Dr. Possibility of lap surgery again this summer for removal of endometriosis and …