Interview with Endometriosis
Me: Good morning Endometriosis, how are you?
Endometriosis: I am well this morning, please, call me Endo, all my friends do.
Me: Friends? How many friends do you have?
Endometriosis: 176 Million, and counting.
Me: Are you comfortable, I know you had some “requests” before we could start this interview.
Endo: Well yes, I am fine, thanks. I was provided with all the things I requested. (narco’s, heating pad, chocolate, hot water bottle, loose-fitting pants and top.)
Me: So, tell me a little about yourself, what you do, who you are?
Endo: I am a chronic pain disease, I affect over 176 million women worldwide. I am the lining of the uterus, but I broke out and I am now all over the body. I have no limitations, I can go anywhere, even to your brain.
Me: You seem almost proud of yourself? Why?
Endo: Well, I get to stay in most women for 10-15 years before I’m found. Dr’s tell these women they just have bad periods, no need for worry, so I get to stay undiscovered all this time. While I spread, I attach myself to other organs, and cause immeasurable pain.
Me: But you do eventually get discovered, and evicted in most cases?
Endo: Oh, I do, eventually. But you see, even after the Dr finds me, and removes me, chances are they didn’t remove all of me, and I will come back, again and again. Even after they remove me, women complain of my pain and they are still told it is in their heads, most of the time. It’s a good cover.
Me: What exactly are you doing in the body of a woman?
Endo: I am creating lesions, adhesions, and causing her organs to stick together. I can sneak into her bowel, ureters, ovaries, uterus, bladder and many other places and hide. If a woman has a hysterectomy to rid herself of me, I can hide in the scar tissue and make it harder to find me. I’m pretty good at the hide and seek game.
Me: How does a woman know you are there, inside her body, doing these horrible things?
Endo: I create a very special pain. I make her feel as though her insides are being twisted, pulled, inflamed. I make it hard for her to have a normal bowel movement, to move freely with out feeling like a million blisters are inside her pelvis, rubbing, hurting, raw. I make her lower back ache, her kidney’s feel like they may have a stone, even her thighs and legs throb with pain. I create a stabbing pain in her side, especially when she is ovulating.
Me: It seems to me with that much pain, the Dr’s would be more understanding, willing to search for you and help rid a woman of you.
Endo: No, most women experience humiliation with me. Not only do I keep them from having babies, a normal working life, and sex life, I also make them ask for pain relief. So most Dr’s write them off as drug addicts seeking pain medications. They make many trips to the ER when the pain becomes too much, but are normally turned away.
Endo: Because I don’t show up on any scans, or blood work, or ultrasounds. I am invisible to technology, only the human eye can find me, with laparoscopy. So what they can’t see with their technology, blood tests, and such, they don’t believe is there. So they deny these women any pain relief and they send them home in pain that can be compared to labor pains of birth.
Me: So what you are telling me is, our Dr’s just need better education. Our ER staff needs to be taught about endometriosis and the excruciating pain involved. They need to be taught that just because they can’t see you, does not mean you are not there. Better knowledge of you would help the women get the treatment and the help they need?
Endo: Yes, more Dr’s, Er’s, nurses would help in the battle if they were taught about me. But you see, I like the silence. I like them not knowing about me. Then I can keep and make more friends. I can go years and years without detection, I can have my way and make a wonderful home inside. I can make you lay in bed for days crying from the pain, I can make you not do the things you want to do, I can take your life and make it whatever I wish. Because the medical community is not educated about me.
Me: In closing, I would like to say a few things to you. I am one of the 176 million women you affect. I am no stranger to laying in bed and crying from the pain, I am no stranger in fighting you so that I can simply enjoy one day of fun with my children. Yes, children. I have two, you failed there, Endo. I am one of those women who have to, time to time seek medical emergency care because I can not handle the intense pain at times. Though I do admit, I stay home and cry through the pain, sometimes pass out from the pain, because laying in excruciating pain is better than going to the ER and being treated like a drug addict. Or having to educate the medical team that is supposed to help me. But, even with all this that you do to me, I’d like you to know, you will not win. You see myself, and other’s are breaking the silence. We are talking about periods, pain, bleeding, bowel movements, everything taboo. We are changing the face of endometriosis. We are TALKING. So you, you will lose this battle, because I have more will than you could ever imagine.
Ladies it is time to start talking. Share this and anything else you might want to share about Endometriosis. We are getting the gears going, the world is more aware now than they were two years ago, but we need more awareness. TALK, opening about your disease, about what it does to you, your life, and let the world know we are not going to be silent just because it is a “female topic”, it is NOT, it is a world topic!
Let’s get to talking!